Tuesday, June 27, 2017

What The Recent ADAPT Protests Have Proven To Me (plus, a Poem!)

On Thursday, June 22, 2017, members of the disability rights group National ADAPT staged a "die-in" in the office of Senator Mitch McConnell, protesting what the proposed cuts to Medicaid funding will do to thousands, if not millions, of Disabled and chronically-ill children, youth, and adults, as well as senior citizens.  Given the nature of this blog and its intended audience, I am not going to provide a link to any news coverage of the protests, as I assume that most of you would have read about it and/or have seen video footage of the protests.  

When a local news station of mine covered the protests, I, out of sheer curiosity, decided to visit the Facebook page of the station and see what members of my community had to say.  I do not "like" the page of the news station, as many reactions and comments on the page are known to be quite repugnant at times, and when it came to the ADAPT protests, that was of no exception.

The typical comments included things along the lines of their own opinions of the inefficacy of Obamacare, and how they did not wish for federal tax dollars to pay for "other people's problems."  There were people who spouted the usual, "If these people would get a job, they wouldn't need to complain about this."  There were some Disabled folks who asserted that they did not use Medicaid services, almost as some sort of stand of supposed moral superiority.

About a week or two before the protests, I remember seeing the same news station's Facebook page run stories about a local author who claimed to "speak through the eyes of" his adolescent Autistic son, and that story that circulated about a woman earning an honorary MBA alongside her Disabled son (who earned an MBA of his own), just for helping him navigate campus life.  These same members of my community were gushing and awing over how "heartwarming" these stories were, the first, of course congratulating the father for claiming the voice of someone whom he should not ever claim to speak for, and the second, for detracting from the fact that it was the young graduate who had done all of the work to earn his degree, not his mother, who should have merely enrolled in the same program as her son and have earned a degree of her own.

What does this tell me?  

My community, which is largely socially-conservative, is more concerned about inspiration porn and the feels they get from it, than they do the rights of their Disabled citizens.  These comments do not surprise me, for other than my local chapter of The Arc, few disability-related organizations in my area seem to express interest in actively collaborating with Disabled adults in their advocacy efforts and meaningfully including them in board positions in their organizations.  Most fundraisers for Disabled people in my area are for prepubescent children and, on the rare occasion, for adolescents.  This is not a mistake: it is simply the further perpetration of societal attitudes that Disabled children are inherently more "innocent" and "deserving" of charity than are their older counterparts.  Especially for Autistic people, is there a push by parents for services such as ABA and segregated homes in rural areas disguised as "integrated living." 

Anyone who has reservations about the Affordable Care Act (ACA) is free to express them as such, and there are, in fact, some flaws in it.  However, if there is the sudden cut of Medicaid funding, the people aforementioned may well be burying their loved ones or whisking them away to segregated institutional settings.

Be careful what you wish for, conservative, non-Disabled America.

 This-past Saturday, I wrote a brief poem simply entitled, "A Love Letter to ADAPT:"

Activists of ADAPT:
I love you so much.
The fact that you have existed for four decades
and have gone relatively-unnoticed by the masses
does not appear to be an accident,
for us, the Disabled population of America
do not have our history taught in the classrooms
of America's schools, no matter what level of education,
because we are medicalized
to such an extent that they know not our distinct heritage.
What was done in the office of Mitch McConnell
on Thursday, June 22, 2017 made America gaze on in abject horror,
seeing before them a reflection of this country's foundation;
they are acting as if this is so sudden, so new,
when, in actuality, this is business-as-usual,
given America's previous treatment of us.
There are some naysayers out there in the crowd,
you know, the ones who say, "you can't do this,"
or, "don't do that," or the dreaded "you're ruining your image,"
naysayers that who do not care whether the mission is accomplished,
who undermine civil disobedience in the face of violence,
who suggest that we remain silent and complacent
rather than call out transgressions prior to their arrival.
I cannot wait to pass on your epic tale of triumphs
from the seventies up to today
on down to my children, when I welcome them
into arms spread wide open,
ensuring that your legacy is, nevermore,
erased out of a dictated "irrelevance."

This isn't one of my greatest works, but it was composed out of pure passion.
Keep doing your thing, National ADAPT. 
 

Sunday, April 2, 2017

Humanizing Autism

Typical autism "awareness" does little to shine a light on the very real, very raw humanity of actual autistic people.  We become statistics to memorize, statistics of estimated prevalence data, how much we "cost" society, how many of us have additional conditions such as epilepsy, how many of us are nonspeaking, how many of us have "average to above-average intelligence."  Our humanity is erased in favor of neat, compartmentalized factoids.  With this arrives the exclusion of us from the conversation about ourselves, which, as I shall echo from people who have been doing this much, much longer than I have, is fundamentally antithetical to one of the basic principles of the Disability Rights Movement.

 Autism acceptance is the humanization of autism, because it not only forces one to shift their paradigm regarding how autism is viewed, and in turn, how autistics are viewed, but it actually forces a person to go through the arduous process of gaining our trust.  In a World where we are privy to vices such as bullying, discrimination, segregation, physical and sexual abuse, neglect, and homicide, we need people to see us just as that: human beings, not changelings captured in the midst of the night by an anthropomorphic entity that robbed us of supposedly "normal" childhoods.  

Being autistic is definitely harder.  I don't think any autistic person would deny that.  But demonizing our disability dehumanizes us.  We should be well past that stage of fear, pity, and guilt, but it still runs rampant in most mainstream autism "awareness" campaigns, even if just subtly.  

Want to learn about autism?  See as genuine potential platonic, romantic, and/or professional connections.  Talk to us, even if we do not use verbal speech.  Plenty of us converse in ASL or another sign language, through AAC, through our body language, or a mix of various communication forms.  Collaborate with us on any endeavors that we undertake, but ensure that we are center and front of stage.  Read books, scholarly articles, and essays about the history of the Neurodiversity Movement or the history of the broader Disability Rights Movement.  Reject organizations that do not meaningfully include us in leadership positions with significant executive influence, or only associate with autistics in a patronizing manner.  

 We are everywhere.  It isn't that difficult.

Wednesday, March 1, 2017

National Day of Mourning 2017

This is not a post that I wish I had to do, to be quite honest.  I do not think that anyone in the disability community wishes we had to assert the fact that we are deserving of the same basic civil and human liberties of, that anyone wishes we had to remind people that we are human beings, and that all human beings are deserving of life.

Nonetheless, this is National Day of Mourning, in which we remember the lives of the estimated four-hundred-plus disabled people murdered by those labeled as "parents" and "caregivers" in the past six years, hundreds of more cases dating back to 1980 that can be read about here. 

If you can attend a vigil in your area, please do so.  I was going to be a site coordinator in my own community, but regrettably, home life came first.  I wish that it didn't most of the time, but it did.

I truly wish that I did not live in a World in which #StopKillingUs was not controversial, but sadly, that is not the case.  It is beyond chilling to think that I or my nonspeaking, visibly-autistic cousin could have been murdered as children-- no, scratch that, even now-- and the mainstream media as well as overall society could have such a crass disregard for the lives lost.  

If you are a parent or caregiver of a disabled person, and are SERIOUSLY considering murder and/or suicide, please contact your local authorities or crisis hotline.  For disabled people, parents or caregivers of disabled people, or professionals or educators who work with disabled people, check out ASAN's 2017 Anti-Filicide Toolkit.